by Anna | Apr 8, 2022 | Myrovlytis Trust Blog
In March the Myrovlytis Trust was invited to contribute our thoughts and experience to the rare disease podcast “How do you spell that?” run by our friends at Patient Worthy. In the podcast, CEO Anna Webb and Charity Officer Katie Nightingale discuss the...
by Anna | Mar 31, 2022 | Myrovlytis Trust Blog
We are delighted to announce the launch today of the BHD Syndrome International Registry (BIRT), in partnership with Pulse Infoframe. We want to reach a stage where there are treatments and eventually a cure for BHD. We believe that the BIRT registry is the first...
by Anna | Mar 28, 2022 | Myrovlytis Trust Blog
We are delighted to announce our current grant awardees, spanning the fields of Birt-Hogg-Dubé Syndrome (BHD) and osteosarcoma. The Myrovlytis Trust re-established grant giving activity in 2021, with the first round of funding decided upon by our grant review panel...
by Anna | Feb 17, 2022 | Myrovlytis Trust Blog
The Myrovlytis Trust and BHD Foundation are delighted to announce the BHD Syndrome International Registry (BIRT), launching in March, in partnership with Pulse Infoframe. We want to reach a stage where there are treatments and eventually a cure for BHD. We...
Recent Comments