Driving research, providing support and improving outcomes for patients and their families affected by rare conditions

Rare Genetics Disorders

We have a long standing interest in rare genetic kidney disorders, particularly Birt-Hogg-Dubé syndrome. We fund research, provide support to patient groups and raise awareness through the BHD Foundation.

Rare Cancers

We are interested in advancing research and identifying novel therapies in rare cancers. Our initial focus is on osteosarcoma, where there is an urgent clinical unmet need to improve prognosis.

Immunotherapies and New Routes to Treatment

We are actively exploring the use of immunotherapy in rare diseases with the aim of funding research to bring novel and effective therapies to the clinic.

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