Driving research, providing support and improving outcomes for rare disease patients and their families

Currently Funded Research

The Myrovlytis Trust  has funded over £6 million of BHD research. See the research projects we are currently funding below.

Current BHD Research Projects Funded by the Myrovlytis Trust

Professor Stefan Marciniak, University of Cambridge, UK
Determining the Prevalence of Pathogenic FLCN Variants from Large Genomic Registries

Dr Neil Rajan, Newcastle University, UK
Delineating the Cutaneous Tumour Microenvironment in Birt-Hogg-Dubé Syndrome

Professor Arjan Houweling, Amsterdam UMC, The Netherlands
Improving Care for Birt-Hogg-Dubé Syndrome Patients: Clinical and Genetic Analysis of a Unique Cohort

Current Osteosarcoma Research Projects Funded by the Myrovlytis Trust

Dr Nancy DeMore, Medical University of South Carolina, USA
Combination Therapy with a Humanized Monoclonal Antibody to Secreted Frizzled Related Protein 2 for Metastatic Osteosarcoma

Professor Graham Cook, University of Leeds, UK
Oncolytic Virus-based Activation of Natural Killer Cells for the Immunotherapy of Osteosarcoma

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