by Katie Honeywood | Jul 17, 2023 | Uncategorized
It is with great sadness that the Myrovlytis Trust announces the loss of Dr Anna Webb. Anna joined the Trust in 2021 as the CEO. Anna came to us with a wealth of experience in the genetic field and a deep passion for helping those with rare conditions gain...
by Katie Honeywood | Jun 6, 2023 | Uncategorized
The Myrovlytis Trust promotes research into rare genetic disorders such as Birt-Hogg-Dubé syndrome and rare cancers such as Osteosarcoma. The Trust also incorporates the BHD Foundation and Osteosarcoma Now. We have funded more than £6 million in research grants to...
by Katie Honeywood | May 11, 2023 | Uncategorized
The Myrovlytis Trust is delighted to announce the appointment of Alison Taylor as our Chief Executive Officer. Alison joins us with a wealth of knowledge as a charity CEO and working in the rare diseases community. Her previous roles include CEO for the Children’s...
by Katie Honeywood | Mar 13, 2023 | Uncategorized
We have an exciting opportunity for a skilled, outgoing, enthusiastic individual to join our team as a part time Communications Officer. The successful candidate will be passionate about raising awareness of the charity through our digital channels. They will...
by Katie Honeywood | Feb 23, 2023 | Uncategorized
We have an exciting opportunity for an individual to lead the Myrovlytis Trust as our CEO. We are looking for someone who has the skills, experience, and passion to shape and deliver the vision and strategy for the charity’s future. The successful candidate will have...
Recent Comments