by Katie Honeywood | May 11, 2023 | Uncategorized
The Myrovlytis Trust is delighted to announce the appointment of Alison Taylor as our Chief Executive Officer. Alison joins us with a wealth of knowledge as a charity CEO and working in the rare diseases community. Her previous roles include CEO for the Children’s...
by Katie Honeywood | Mar 13, 2023 | Uncategorized
We have an exciting opportunity for a skilled, outgoing, enthusiastic individual to join our team as a part time Communications Officer. The successful candidate will be passionate about raising awareness of the charity through our digital channels. They will...
by Katie Honeywood | Feb 23, 2023 | Uncategorized
We have an exciting opportunity for an individual to lead the Myrovlytis Trust as our CEO. We are looking for someone who has the skills, experience, and passion to shape and deliver the vision and strategy for the charity’s future. The successful candidate will have...
by Katie Nightingale | Oct 10, 2022 | Uncategorized
On 22nd November 2022, a mini-symposium “On Birt-Hogg-Dubé Syndrome and Folliculin” is being held in celebration of the PhD defenses of Irma van de Beek and Iris Glykofridis. The event will feature an update about the current and future BHD research taking place at...
by Jazz | Jun 13, 2022 | Uncategorized
We are delighted to launch our curated osteosarcoma clinical trial database. Our clinical trial database was designed so that patients have the tools and information to explore new treatment options and make decisions that are right for them. Each trial has been...
Recent Comments