Driving research, providing support and improving outcomes for rare disease patients and their families

BHD Explainer Video

BHD Explainer Video

The Myrovlytis Trust is delighted to launch their new Birt-Hogg-Dubé Syndrome (BHD) Explainer Video. BHD is a rare genetic condition that causes fibrofolliculomas (benign skin lesions), lung cysts, pneumothoraces and kidney cancer. 600 families have been diagnosed...
Call for research proposals

Call for research proposals

The Myrovlytis Trust is pleased to launch its call for research proposals dedicated to gene therapy for the rare monogenic disorder Birt-Hogg-Dubé syndrome.     Submission deadline for proposals: 30th August 2021, 5pm (BST)  Rationale   Gene therapies have the...
Announcing the 2021 BHD Symposium

Announcing the 2021 BHD Symposium

The Myrovlytis Trust is delighted to announce the relaunch of our annual BHD Symposium, bringing together researchers and clinicians worldwide to discuss the latest developments in the BHD world. The 2021 Symposium will take place on October 21st and 22nd 2021, and...
One Cancer Voice| March 17th 2021

One Cancer Voice| March 17th 2021

With a substantial backlog of cancer tests and treatments, getting cancer services back to pre-pandemic levels is simply not enough. So we have joined with 46 other cancer charities to call on the UK and Devolved governments to...