by Jazz | Jun 29, 2021 | Myrovlytis Trust Blog
The Myrovlytis Trust is delighted to launch their new Birt-Hogg-Dubé Syndrome (BHD) Explainer Video. BHD is a rare genetic condition that causes fibrofolliculomas (benign skin lesions), lung cysts, pneumothoraces and kidney cancer. 600 families have been diagnosed...
by Katie Nightingale | Jun 25, 2021 | Myrovlytis Trust Blog
The team from the Myrovlytis Trust attended the drug repurposing for rare diseases conference (14-15th June 2021) organised by findacure. Findacure aim to build a strong, supportive and collaborative rare disease community to transform the lives of people affected by...
by Jazz | Jun 7, 2021 | Myrovlytis Trust Blog
The Myrovlytis Trust is pleased to launch its call for research proposals dedicated to gene therapy for the rare monogenic disorder Birt-Hogg-Dubé syndrome. Submission deadline for proposals: 30th August 2021, 5pm (BST) Rationale Gene therapies have the...
by Jazz | Jun 7, 2021 | Myrovlytis Trust Blog
We attended the 2021 annual Sarcoma Patients EuroNet (SPAEN) conference where patients and academics came together to share their research and experiences. Here we share with you some of the highlights from the conference with a focus on bone sarcoma. ...
by Anna | Apr 28, 2021 | Myrovlytis Trust Blog
The Myrovlytis Trust is delighted to announce the relaunch of our annual BHD Symposium, bringing together researchers and clinicians worldwide to discuss the latest developments in the BHD world. The 2021 Symposium will take place on October 21st and 22nd 2021, and...
by Anna | Apr 28, 2021 | Myrovlytis Trust Blog
With a substantial backlog of cancer tests and treatments, getting cancer services back to pre-pandemic levels is simply not enough. So we have joined with 46 other cancer charities to call on the UK and Devolved governments to...
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