by Katie Honeywood | Aug 12, 2021 | Myrovlytis Trust Blog
The Myrovyltis Trust promotes research into rare genetic disorders such as Birt-Hogg-Dubé syndrome and rare cancers such as Osteosarcoma. We have funded more than £6 million in research grants to laboratories around the world. We are in a period of...
by Katie Nightingale | Aug 9, 2021 | Myrovlytis Trust Blog
The abstract submission deadline for the 2021 BHD Symposium is August 16th – just 1 week away! Find out how to submit an abstract here.If you haven’t already registered for the event, you can get your free tickets here. We are really looking forward to hearing...
by Jazz | Jul 30, 2021 | Myrovlytis Trust Blog
This July we were delighted to take part in Sarcoma Awareness Month and attend a series of lectures run by Sarcoma UK which brought together clinicians, researchers and patients in the sarcoma community to share their knowledge and experience. This report shares with...
by Katie Nightingale | Jul 14, 2021 | Myrovlytis Trust Blog
The Myrovlytis Trust are delighted to announce we have been accepted as a member of the Association of Medical Research Charities (AMRC). AMRC membership is the hallmark of quality research funding, and we are proud to meet their membership criteria which includes...
by Katie Nightingale | Jun 30, 2021 | Myrovlytis Trust Blog
Today is the first ever World Pneumothorax Day and is celebrating the launch of the NHS Familial Pneumothorax Rare Disease Collaborative Network. Familial pneumothorax accounts for around 10% of all spontaneous pneumothoraces. Did you know that Birt-Hogg-Dubé Syndrome...
by Jazz | Jun 29, 2021 | Myrovlytis Trust Blog
The Myrovlytis Trust is delighted to launch their new Birt-Hogg-Dubé Syndrome (BHD) Explainer Video. BHD is a rare genetic condition that causes fibrofolliculomas (benign skin lesions), lung cysts, pneumothoraces and kidney cancer. 600 families have been diagnosed...
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