by Jazz | Sep 1, 2022 | Myrovlytis Trust Blog
We are excited to announce that the first Osteosarcoma Now Newsletter (ONN) will be in your inbox on Friday 30th September. ONN will be published every 3 months and it aims to keep you informed about the latest osteosarcoma news. Each issue will discuss the current...
by Katie Honeywood | Aug 15, 2022 | Myrovlytis Trust Blog
We are seeking to appoint new Trustees who have the experience to promote the charity’s vision, mission, and goals, and assist with strategy development to ensure the charity meets its financial, legal and governance obligations. We are in a period of reinvigorating...
by Anna | Aug 11, 2022 | Myrovlytis Trust Blog
We were delighted to attend the MIB Agents FACTOR conference in San Diego in June. The osteosarcoma (OS) community joined forces for an inspirational cause – to make things better for those with OS. Support for families MIB agents have several programmes for patients...
by Katie Nightingale | Jul 12, 2022 | Myrovlytis Trust Blog
The 11th European Conference on Rare Diseases & Orphan Products 2022 was held from 27th June to 1st July. We were delighted to attend and present at this event focused on putting rare disease policy into action. Over 840 participants from 61 countries came...
by Jazz | Jul 1, 2022 | Myrovlytis Trust Blog
On June 30th we celebrated World Pneumothorax Day (WPD) and raised awareness of the rare causes of collapsed lungs. WPD was started in 2021 with the Myrovlytis Trust to mark the launch of the NHS Familial Pneumothorax Rare Disease Collaborative Network. A...
by Katie Nightingale | May 9, 2022 | Myrovlytis Trust Blog
The Myrovlytis Trust is delighted to announce that registration and abstract submission for the virtual BHD Community Symposium 2022 is now open! Following the success of our research symposium in 2021, the Myrovlytis Trust and BHD Foundation are delighted to announce...
Recent Comments