Driving research, providing support and improving outcomes for patients and their families affected by rare conditions



Happy Holidays!

Happy Holidays!

Our offices will be closed from Friday 23rd December 2022 and will reopen on Tuesday 3rd January 2023. We will respond to any enquiries upon our return. From all of us at the Myrovlytis Trust, we wish you a wonderful holiday season and a happy new year!
BHD Community Symposium 2022

BHD Community Symposium 2022

The first BHD Community Symposium was held on October 8th, 2022. We were delighted to have over 200 people registered from 22 countries across 5 continents for this virtual event. This year’s symposium was the first deliberately designed to be accessible to all...
Immuno UK Conference Report

Immuno UK Conference Report

In September 2022, we attended the Immuno UK conference. Held over 2 days in London, UK, this conference brought together over 260 people from industry and academic research. We heard the latest updates in the field of “immune oncology”. This can be described as...
Sign Up for the Osteosarcoma Now Newsletter

Sign Up for the Osteosarcoma Now Newsletter

We are excited to announce that the first Osteosarcoma Now Newsletter (ONN) will be in your inbox on Friday 30th September. ONN will be published every 3 months and it aims to keep you informed about the latest osteosarcoma news. Each issue will discuss the current...
Join us as a Trustee

Join us as a Trustee

We are seeking to appoint new Trustees who have the experience to promote the charity’s vision, mission, and goals, and assist with strategy development to ensure the charity meets its financial, legal and governance obligations. We are in a period of reinvigorating...