Driving research, providing support and improving outcomes for rare disease patients and their families

Trustee Opportunities

Trustee Opportunities

The Myrovyltis Trust promotes research into rare genetic disorders such as Birt-Hogg-Dubé syndrome and rare cancers such as Osteosarcoma.  We have funded more than £6 million in research grants to laboratories around the world.    We are in a period of...
Sarcoma Awareness Month

Sarcoma Awareness Month

This July we were delighted to take part in Sarcoma Awareness Month and attend a series of lectures run by Sarcoma UK which brought together clinicians, researchers and patients in the sarcoma community to share their knowledge and experience. This report shares with...
AMRC Membership Approved!

AMRC Membership Approved!

The Myrovlytis Trust are delighted to announce we have been accepted as a member of the Association of Medical Research Charities (AMRC). AMRC membership is the hallmark of quality research funding, and we are proud to meet their membership criteria which includes...
World Pneumothorax Day

World Pneumothorax Day

Today is the first ever World Pneumothorax Day and is celebrating the launch of the NHS Familial Pneumothorax Rare Disease Collaborative Network. Familial pneumothorax accounts for around 10% of all spontaneous pneumothoraces. Did you know that Birt-Hogg-Dubé Syndrome...
BHD Explainer Video

BHD Explainer Video

The Myrovlytis Trust is delighted to launch their new Birt-Hogg-Dubé Syndrome (BHD) Explainer Video. BHD is a rare genetic condition that causes fibrofolliculomas (benign skin lesions), lung cysts, pneumothoraces and kidney cancer. 600 families have been diagnosed...