Driving research, providing support and improving outcomes for rare disease patients and their families



Science Communication Training Course

Science Communication Training Course

We are delighted to announce a fully funded science communication training course for PhD students working in BHD or osteosarcoma. The course will provide students with the tools to present and discuss their work with a variety of audiences. We see this as a key skill...
Funding Call Spring 2022

Funding Call Spring 2022

The Myrovlytis Trust is delighted to launch a call for proposals for our Spring 2022 round of funding. We are now open for applications for Small/Pilot Studies and PhD Studentships in our priority areas of Birt-Hogg-Dubé Syndrome (and related kidney disorders) and...
Our Work Experience at the Myrovlytis Trust

Our Work Experience at the Myrovlytis Trust

Guest blog post by Mariné, Leila and Sofia. Our work experience team consisted of two psychology undergraduate students (Mariné and Leila) and a school student studying art and design (Sofia). We are grateful to have had the opportunity to work with the Myrovlytis...
2021 BHD Symposium Report

2021 BHD Symposium Report

October saw the first ever virtual BHD Symposium, and we were delighted to welcome speakers, chairs and 293 attendees from across the globe for two days of research updates and discussion. In this report we highlight the current research conducted into BHD and look to...
RAREsummit21 Conference Report

RAREsummit21 Conference Report

The Myrovlytis Trust and BHD Foundation attended RAREsummit21 on 7th October 2021. Organised by Cambridge Rare Disease Network, this one-day event brought together patients, advocates and experts to discuss the challenges facing the rare disease community. The first...