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We are delighted to announce Registration and Abstract Submission for the BHD Symposium 2023 are now open!

This is the first time we will be bringing together the whole BHD research community in person since 2015. The event will showcase the current research into BHD and folliculin and we hope it will provide a space for new collaborations to accelerate future research.

This year’s symposium is a hybrid event with the aim to reach as many people across the world as possible. You can book tickets to join us either online or in person in London, UK.

We are excited to confirm that this years keynote speakers are Dr. Marston Linehan, Chief of Urologic Surgery and the Urologic Oncology Branch at the National Cancer Institute, National Institute of Health, Bethesda, USA and Professor Andrea Ballabio, Director and Principal Investigator at the Telethon Institute of Genetics and Medicine (TIGEM), Italy.

We will be joined by researchers from across the globe including early career researchers. You will also have the opportunity to hear from patients who will be sharing their stories. We will be announcing the program soon.

You will also have the opportunity to hear from patients who will be sharing their stories.

This year’s event is primarily aimed at researchers and clinicians however everyone from the BHD community including people with BHD, friends, families and carers are welcome to attend. This event is an opportunity for everyone to come together, listen, share stories, and shape the future of BHD.


We are delighted to announce registration is open for this year’s symposium being held on Friday 13 and Saturday 14 October 2023 at the Wellcome Collection, London, UK, and online.

Early bird tickets are available until 08 August 2023 and tickets are limited in number so book your space early!

Click here to book your space.

Abstract Submission

Abstract submission for the BHD Symposium 2023 is open. We welcome abstracts describing fundamental and translational research in the BHD field. The deadline for abstract submission is Friday 14th July.

We welcome abstract submissions from clinicians and researchers worldwide. We particularly encourage submissions from PhD students, postdoctoral and early career researchers.

Abstracts will be reviewed and selected for presentation by the organising committee, including members from our patient advisory board. Abstracts will be selected based on their scientific excellence and ability to communicate their work to a general audience. You will be notified if your abstract has been selected for presentation by 4th August 2023.

To submit your abstract, please download the Abstract Submission form and send the completed form to bhdsymposia@myrovlytistrust.org.

Download the BHD Community Symposium 2023 Abstract Guidance.

View our BHD Community Symposium 2023 Abstract Guidance.

Travel Grants

We want to encourage as many people to attend as possible. We are open to accepting travel grants from early career researchers to cover travel and accommodation.

There is a limited amount of grants available. Each grant will be assessed by a panel and an outcome will be provided by 14 July 2023.

To apply for a grant please complete and return the BHD Travel Grant form to bhdsymposia@myrovlytistrust.org by 16 June 2023.

Download the BHD Symposium Travel Grant.

Conference Dinner

All delegates are invited to join us at the dinner, where they will be provided with a selection of food and drinks.

Places at the dinner are limited and will be sold on a first come, first served basis. The event is expected to sell out so make sure you book your tickets early!

Tickets are priced at £75 per person and can be booked here.

Planning Committee

Marston Linehan, National Cancer Institute
Stefan Marciniak, University of Cambridge
Chiara Di Malta, Telethon Institute of Genetics and Medicine
Ortrud Steinlein, LMU Munich
Joyce Teng,  Stanford University
Andrew Tee, Cardiff University
Tian Zhang, UT Southwestern Medical Center.
Rob Wolthius, Amsterdam UMC
Elizabeth, USA
Dieke, Netherlands



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