Driving research, providing support and improving outcomes for patients and their families affected by rare conditions


BHD and Folliculin Rersearch Symposium 2023

We would like to thank all speakers and attendees for joining us at the BHD and Folliculin Research Symposium 2023.

This was the first time we brought together the BHD research community in person since 2015, and our first hybrid event.

Our 2024 BHD Community Symposium will be held online and will focus on our patient community. Watch this space for information.

Planning Committee

Marston Linehan, National Cancer Institute
Mehdi Mollapour, State Upstate Medical University
Stefan Marciniak, University of Cambridge
Chiara Di Malta, Telethon Institute of Genetics and Medicine
Ortrud Steinlein, LMU Munich
Joyce Teng,  Stanford University
Andrew Tee, Cardiff University
Tian Zhang, UT Southwestern Medical Center.
Rob Wolthius, Amsterdam UMC
Elizabeth, USA
Dieke, Netherlands


We would like to thank the sponsors of the BHD and Folliculin Research Symposium 2023 for their kind generosity.

Click on the below images to find out more about each of our sponsors.



Osteosarcoma Institute
Bardo Foundation
Rare Revolution Magazine
Gene People logo
Gene People logo
Sarcoma Patient advocacy Global Network

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