Driving research, providing support and improving outcomes for rare disease patients and their families



Symposium 

Following the success of our research symposium in 2021, the Myrovlytis Trust and BHD Foundation are delighted to announce our 2022 symposium for the BHD community.

In 2021, we held 2 patient-focused sessions and the overwhelming response from attendees was that they wanted more! We have therefore dedicated this year to an inclusive and collaborative event aimed at a general audience featuring BHD research, personal stories, and an opportunity for the community to network and provide mutual support.

Anyone from the BHD community is welcome to attend the symposium, whether you have BHD (or are a family member or friend), are a researcher studying BHD or provide clinical care to those with BHD. This event is an opportunity for everyone to come together, listen, share stories and shape the future of BHD.

Registration

Registration is now open for the BHD Community Symposium 2022.

 The symposium is virtual, free of charge and will be taking place on Saturday 8th October 2022, 3 pm – 8 pm BST (10 am – 3 pm EST)

Please register to secure your place here.

Abstract Submission

We welcome abstracts describing fundamental and translational research in the BHD field. Abstracts should be written for a general audience, with particular attention paid to the use of scientific language and explaining the relevance of the work to the BHD community.

Abstract submission for the BHD Community Symposium 2022 is now open. The deadline for abstract submission is Friday July 22nd 2022.

To submit your abstract, please download the abstract form and send the completed form to bhdsymposia@myrovlytistrust.org.

Download the Abstract Form

Eligibility

We welcome abstract submissions from clinicians and researchers worldwide. We particularly encourage submissions from PhD students, postdoctoral and early career researchers.

Decisions

Abstracts will be reviewed and selected for presentation by the organising committee, including members from our patient advisory board. Abstracts will be selected based on their scientific excellence and ability to communicate  work to a general audience. You will be notified if your abstract has been selected for presentation by Monday 22nd August 2022.

Please contact us if you have any questions regarding abstract submission.

Programme

A draft programme will be available soon.

 

Organising Committee

Lisa Henske, Brigham And Women’s Hospital
Neil Rajan, Newcastle University
Charles Steward, Congenica
Julia Thierauf, Massachusetts General Hospital
Jenny, France
Barnaby, USA
Elizabeth, USA

Partnerships

Memberships

Osteosarcoma Institute
Bardo Foundation
Rare Revolution Magazine
Gene People logo
Sarcoma Patient advocacy Global Network

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