Driving research, providing support and improving outcomes for patients and their families affected by rare conditions


Following the success of our research symposium in 2021, the Myrovlytis Trust and BHD Foundation are delighted to announce our 2022 symposium for the BHD community.

In 2021, we held 2 patient-focused sessions and the overwhelming response from attendees was that they wanted more! We have therefore dedicated this year to an inclusive and collaborative event aimed at a general audience featuring BHD research, personal stories, and an opportunity for the community to network and provide mutual support.

Anyone from the BHD community is welcome to attend the symposium, whether you have BHD (or are a family member or friend), are a researcher studying BHD or provide clinical care to those with BHD. This event is an opportunity for everyone to come together, listen, share stories and shape the future of BHD.


Registration is now open for the BHD Community Symposium 2022.

 The symposium is virtual, free of charge and will be taking place on Saturday 8th October 2022, 3 pm – 8 pm BST (10 am – 3 pm EST)

Please register to secure your place here.


We are delighted to announce the release of the draft programme for the 2022 BHD Symposium.

Abstract Submission

Thank you to everyone who submitted an abstract for the 2022 BHD Symposium. Abstracts are currently under review by the organising committee, including members from our patient advisory board. Abstracts will be selected based on their scientific excellence and ability to communicate work to a general audience. You will be notified if your abstract has been selected for presentation by Friday 02 September

Organising Committee

Lisa Henske, Brigham And Women’s Hospital
Neil Rajan, Newcastle University
Charles Steward, Congenica
Julia Thierauf, Massachusetts General Hospital
Jenny, France
Barnaby, USA
Elizabeth, USA



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