Driving research, providing support and improving outcomes for rare disease patients and their families


The Myrovlytis Trust is delighted to announce the relaunch of our annual Birt-Hogg-Dubé Symposium, bringing together patients, researchers and clinicians worldwide to discuss the latest developments in the BHD world.

The 2021 Symposium will take place from 3pm-6pm (British Summer Time) on October 21st/22nd and will be held virtually. We anticipate returning to in-person symposia from 2022.

Register for free to secure your attendance here.

We are also holding two BHD patient-focused sessions at the symposium exploring the future of BHD.  Tickets are free and are aimed at BHD patients and their loved ones. Find out more and register here

Abstract Submission

Thank you to everyone who submitted an abstract for the 2021 BHD Symposium.  These abstracts can be viewed here


The BHD symposium 2021 programme is available to download here


Organising Committee

Dr Medhi Mollapour (Upstate Medical University, New York, USA)
Dr Gennady Bratslavsky (Upstate Medical University, New York, USA)
Dr Marston Linehan, M.D. (National Cancer Institute, NIH, USA)
Dr Laura Schmidt (National Cancer Institute, NIH, USA)
Dr Elizabeth Henske, M.D. (Brigham and Women’s Hospital, Boston, USA)
Professor Andrea Ballabio (Director of TIGEM, Italy)
Dr Chiara di Malta (TIGEM, Italy)
Dr Julia Thierauf (Massachusetts General Hospital, Boston, USA)


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