Driving research, providing support and improving outcomes for rare disease patients and their families


The Myrovlytis Trust is delighted to announce the relaunch of our annual Birt-Hogg-Dubé Symposium, bringing together patients, researchers and clinicians worldwide to discuss the latest developments in the BHD world.

The 2021 Symposium will take place from 3pm-7pm (British Summer Time) on October 21st/22nd and will be held virtually. We anticipate returning to in-person symposia from 2022.

Register for free to secure your attendance here.

Abstract Submission

We welcome abstracts from all areas relating to Birt-Hogg-Dubé Syndrome, from fundamental research on the molecular biology of BHD through to clinical and translational research. To submit an abstract please download this form and email your abstract to bhdsymposia@myrovlytistrust.org Guidelines for abstract submission can be found here.

The deadline for abstract submission is July 16th 2021. Applications will be reviewed and selected for presentation by the and notifications will be sent by August 31st 2021. Individuals may submit up to two abstracts as primary or presenting author. Additional abstracts of interest may be selected for Poster Presentations which will be accompanied by a brief video or audio recording.

Additionally, if you are a patient with BHD and would like to share your insight on the reality of living with BHD we would really like to hear from you! We strongly believe in bringing together clinicians, researchers and patients to strengthen our community and drive forwards finding a cure for BHD. Please email bhdsymposia@myrovlytistrust.org with a brief description of your story (maximum 300 words).


Confirmed speakers so far include:

Dr Marston Linehan, M.D. (National Cancer Institute, NIH)
Dr Elizabeth Henske, M.D. (Brigham and Women’s Hospital, Boston)
Dr Chiara di Malta (TIGEM, Italy)

Full details of the programme will be announced soon.

Organising Committee

Dr Marston Linehan, M.D. (National Cancer Institute, NIH, USA)
Dr Laura Schmidt (National Cancer Institute, NIH, USA)
Dr Elizabeth Henske, M.D. (Brigham and Women’s Hospital, Boston, USA)
Professor Andrea Ballabio (Director of TIGEM, Italy)
Dr Chiara di Malta (TIGEM, Italy)
Dr Julia Thierauf (Massachusetts General Hospital, Boston, USA)

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