Driving research, providing support and improving outcomes for patients and their families affected by rare conditions



Communications Officer

Communications Officer

We have an exciting opportunity for a skilled, outgoing, enthusiastic individual to join our team as a part time Communications Officer.   The successful candidate will be passionate about raising awareness of the charity through our digital channels. They will...
We are hiring

We are hiring

We have an exciting opportunity for an individual to lead the Myrovlytis Trust as our CEO. We are looking for someone who has the skills, experience, and passion to shape and deliver the vision and strategy for the charity’s future. The successful candidate will have...
Join us as a Trustee

Join us as a Trustee

We are seeking to appoint new Trustees who have the experience to promote the charity’s vision, mission, and goals, and assist with strategy development to ensure the charity meets its financial, legal and governance obligations. We are in a period of reinvigorating...
Trustee Opportunities

Trustee Opportunities

The Myrovyltis Trust promotes research into rare genetic disorders such as Birt-Hogg-Dubé syndrome and rare cancers such as Osteosarcoma.  We have funded more than £6 million in research grants to laboratories around the world.    We are in a period of...