Driving research, providing support and improving outcomes for patients and their families affected by rare conditions



Join us as a Trustee

Join us as a Trustee

We are seeking to appoint new Trustees who have the experience to promote the charity’s vision, mission, and goals, and assist with strategy development to ensure the charity meets its financial, legal and governance obligations. We are in a period of reinvigorating...
Trustee Opportunities

Trustee Opportunities

The Myrovyltis Trust promotes research into rare genetic disorders such as Birt-Hogg-Dubé syndrome and rare cancers such as Osteosarcoma.  We have funded more than £6 million in research grants to laboratories around the world.    We are in a period of...