by Katie Nightingale | Oct 15, 2021 | Myrovlytis Trust Blog
The Myrovlytis Trust and BHD Foundation attended RAREsummit21 on 7th October 2021. Organised by Cambridge Rare Disease Network, this one-day event brought together patients, advocates and experts to discuss the challenges facing the rare disease community. The first...
by Katie Nightingale | Aug 9, 2021 | Myrovlytis Trust Blog
The abstract submission deadline for the 2021 BHD Symposium is August 16th – just 1 week away! Find out how to submit an abstract here.If you haven’t already registered for the event, you can get your free tickets here. We are really looking forward to hearing...
by Katie Nightingale | Jul 14, 2021 | Myrovlytis Trust Blog
The Myrovlytis Trust are delighted to announce we have been accepted as a member of the Association of Medical Research Charities (AMRC). AMRC membership is the hallmark of quality research funding, and we are proud to meet their membership criteria which includes...
by Katie Nightingale | Jun 30, 2021 | Myrovlytis Trust Blog
Today is the first ever World Pneumothorax Day and is celebrating the launch of the NHS Familial Pneumothorax Rare Disease Collaborative Network. Familial pneumothorax accounts for around 10% of all spontaneous pneumothoraces. Did you know that Birt-Hogg-Dubé Syndrome...
by Katie Nightingale | Jun 25, 2021 | Myrovlytis Trust Blog
The team from the Myrovlytis Trust attended the drug repurposing for rare diseases conference (14-15th June 2021) organised by findacure. Findacure aim to build a strong, supportive and collaborative rare disease community to transform the lives of people affected by...
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