Driving research, providing support and improving outcomes for rare disease patients and their families

AMRC Membership Approved!

AMRC Membership Approved!

The Myrovlytis Trust are delighted to announce we have been accepted as a member of the Association of Medical Research Charities (AMRC). AMRC membership is the hallmark of quality research funding, and we are proud to meet their membership criteria which includes...
World Pneumothorax Day

World Pneumothorax Day

Today is the first ever World Pneumothorax Day and is celebrating the launch of the NHS Familial Pneumothorax Rare Disease Collaborative Network. Familial pneumothorax accounts for around 10% of all spontaneous pneumothoraces. Did you know that Birt-Hogg-Dubé Syndrome...