Driving research, providing support and improving outcomes for patients and their families affected by rare conditions



Happy Holidays!

Happy Holidays!

Our offices will be closed from Friday 23rd December 2022 and will reopen on Tuesday 3rd January 2023. We will respond to any enquiries upon our return. From all of us at the Myrovlytis Trust, we wish you a wonderful holiday season and a happy new year!
Sign Up for the Osteosarcoma Now Newsletter

Sign Up for the Osteosarcoma Now Newsletter

We are excited to announce that the first Osteosarcoma Now Newsletter (ONN) will be in your inbox on Friday 30th September. ONN will be published every 3 months and it aims to keep you informed about the latest osteosarcoma news. Each issue will discuss the current...
World Pneumothorax Day 2022

World Pneumothorax Day 2022

On June 30th we celebrated World Pneumothorax Day (WPD) and raised awareness of the rare causes of collapsed lungs.  WPD was started in 2021 with the Myrovlytis Trust to mark the launch of the NHS Familial Pneumothorax Rare Disease Collaborative Network.  A...
New Curated Osteosarcoma Clinical Trial Database

New Curated Osteosarcoma Clinical Trial Database

We are delighted to launch our curated osteosarcoma clinical trial database. Our clinical trial database was designed so that patients have the tools and information to explore new treatment options and make decisions that are right for them. Each trial has been...