Driving research, providing support and improving outcomes for patients and their families affected by rare conditions



Sign Up for the Osteosarcoma Now Newsletter

Sign Up for the Osteosarcoma Now Newsletter

We are excited to announce that the first Osteosarcoma Now Newsletter (ONN) will be in your inbox on Friday 30th September. ONN will be published every 3 months and it aims to keep you informed about the latest osteosarcoma news. Each issue will discuss the current...
World Pneumothorax Day 2022

World Pneumothorax Day 2022

On June 30th we celebrated World Pneumothorax Day (WPD) and raised awareness of the rare causes of collapsed lungs.  WPD was started in 2021 with the Myrovlytis Trust to mark the launch of the NHS Familial Pneumothorax Rare Disease Collaborative Network.  A...
New Curated Osteosarcoma Clinical Trial Database

New Curated Osteosarcoma Clinical Trial Database

We are delighted to launch our curated osteosarcoma clinical trial database. Our clinical trial database was designed so that patients have the tools and information to explore new treatment options and make decisions that are right for them. Each trial has been...
2021: A year in review

2021: A year in review

A week is a long time in politics, 3 months is a long time when we are cut off from society in covid times, and a year is…. just about enough time to reinvigorate a charity and embark on a new era it seems.      In January 2021, I had the great honour to be...
ESMO Sarcoma & GIST 2022 Symposium Report

ESMO Sarcoma & GIST 2022 Symposium Report

The European Society of Medical Oncology (ESMO) Sarcoma & GIST Symposium 2022 took place from 31 January to 2 February 2022. The Myrovlytis Trust were delighted to attend the symposium and witness researchers from across the globe coming together to share their...