Driving research, providing support and improving outcomes for patients and their families affected by rare conditions



2021: A year in review

2021: A year in review

A week is a long time in politics, 3 months is a long time when we are cut off from society in covid times, and a year is…. just about enough time to reinvigorate a charity and embark on a new era it seems.  In January 2021, I had the great honour to be appointed as...
Announcing the 2021 BHD Symposium

Announcing the 2021 BHD Symposium

The Myrovlytis Trust is delighted to announce the relaunch of our annual BHD Symposium, bringing together researchers and clinicians worldwide to discuss the latest developments in the BHD world. The 2021 Symposium will take place on October 21st and 22nd 2021, and...
One Cancer Voice| March 17th 2021

One Cancer Voice| March 17th 2021

With a substantial backlog of cancer tests and treatments, getting cancer services back to pre-pandemic levels is simply not enough. So we have joined with 46 other cancer charities to call on the UK and Devolved governments to...