by Anna | Aug 11, 2022 | Myrovlytis Trust Blog
We were delighted to attend the MIB Agents FACTOR conference in San Diego in June. The osteosarcoma (OS) community joined forces for an inspirational cause – to make things better for those with OS. Support for families MIB agents have several programmes for patients...
by Anna | Apr 8, 2022 | Myrovlytis Trust Blog
In March the Myrovlytis Trust was invited to contribute our thoughts and experience to the rare disease podcast “How do you spell that?” run by our friends at Patient Worthy. In the podcast, CEO Anna Webb and Charity Officer Katie Nightingale discuss the...
by Anna | Mar 31, 2022 | Myrovlytis Trust Blog
We are delighted to announce the launch today of the BHD Syndrome International Registry (BIRT), in partnership with Pulse Infoframe. We want to reach a stage where there are treatments and eventually a cure for BHD. We believe that the BIRT registry is the first...
by Anna | Mar 28, 2022 | Myrovlytis Trust Blog
We are delighted to announce our current grant awardees, spanning the fields of Birt-Hogg-Dubé Syndrome (BHD) and osteosarcoma. The Myrovlytis Trust re-established grant giving activity in 2021, with the first round of funding decided upon by our grant review panel...
by Anna | Mar 25, 2022 | Myrovlytis Trust Blog
We are delighted to announce that this week marked the launch of Osteosarcoma Now (www.osteosarcomanow.org), a website dedicated to support, information and help finding treatment options for osteosarcoma patients and their loved ones worldwide. Osteosarcoma Now was...
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