Driving research, providing support and improving outcomes for rare disease patients and their families



We are delighted to announce that this week marked the launch of Osteosarcoma Now (www.osteosarcomanow.org), a website dedicated to support, information and help finding treatment options for osteosarcoma patients and their loved ones worldwide.

Osteosarcoma Now was developed with the sole purpose of supporting osteosarcoma patients and their families throughout their cancer journey, wherever they live in the world. Through providing clear signposting, user-friendly interfaces and sharing the science in an accessible way we hope we can make a challenging time a little bit easier. Our curated clinical trial database was designed so that patients have the tools and information to explore new treatment options and make decisions that are right for them and will be launching very soon.

We strongly believe that collaboration should be at the forefront of everything we do. We want to bring patients, researchers, clinicians and sarcoma charities together from across the globe to share ideas, advance research and together improve outcomes for those diagnosed with osteosarcoma.

The website was launched this week at the British Sarcoma Group meeting in Liverpool, UK. Our Charity Officers Jazzmin and Katie were on hand to guide attendees (300) through the website and discuss our plans for the future. We hope that this resource will help families in a difficult time, and look forward to launching the clinical trial database very soon.