Driving research, providing support and improving outcomes for patients and their families affected by rare conditions



MISSION STATEMENT

Driving research, providing support and improving outcomes for patients and their families affected by rare conditions

WHAT WE DO

We provide information and support to patients, raise awareness among clinicians and fund research

We are…

The Myrovlytis Trust is a charity founded in 2007  to transform the outlook for rare conditions. With an initial focus on Birt-Hogg-Dubé Syndrome and osteosarcoma, the trust strategically funds research directed towards new treatments.  We want to ensure that patients gain access to the same state-of-the-art technologies, breakthroughs and therapies as those with more common disease.

News

Rare Genetic Disorders

We have a long standing interest in rare genetic kidney disorders, particularly Birt-Hogg-Dubé syndrome. We fund research, provide support to patient groups and raise awareness through the BHD Foundation.

Rare Cancers

We are interested in advancing research and identifying novel therapies in rare cancers. Our initial focus is on osteosarcoma, where there is an urgent clinical unmet need to improve prognosis.

Partnerships

Memberships

Osteosarcoma Institute
Bardo Foundation
Rare Revolution Magazine
Gene People logo
Sarcoma Patient advocacy Global Network

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